I go through phases when it comes to talking about Trichotillomania.
The update to this post is just the photo. Taken around 5 years ago, when I was using the black hair spray on the top of my head. which is here http://s1308.photobucket.com/user/MissesCee/media/mehair_zpsasus7p1k.jpg.html?filters%5Buser%5D=144521738&filters%5Brecent%5D=1&sort=1&o=0
Can’t figure out how to get the image in the post. Grrr
I shaved my head 3 and a half years ago after suffering this bullshit since the age of 9. At that point, I had hardly any hair on the top of my head and I dyed my hair black and used a black hairspray to ‘cover up’ the bald bit. When I started using the coloured hairspray, the bald patch was only about the size of a 50p coin. It grew, gradually, and while I was fully aware that my problem was getting worse and worse, it wasn’t until I had been covering it with the spray for a couple of years that I suddenly realised how disgusting and terrible it looked. In my head, I had covered it perfectly. I did get the occasional comment from random strangers though, such as “Have you shaved the top of your head?” and I thought, WTF? Why would anyone do that? It slowly dawned on me that the issue was far more obvious than I had realised, although, oddly, if I ever brought it up with people they would tell me they would never have noticed. Bullshit.
Anyways, I made the snap decision to shave my head. I had never considered it before but just randomly thought “Fuck it”, and just went on and did it. I had already bought my first wig and found it difficult to wear with my actual hair underneath. It also felt pretty tragic, clinging on to those last few strands, looking like the dude from the library in Harry Potter.
My daughter was massively confused by my different look at first. She was also upset and asked if it meant that I was “A boy now?”. The comment just cements the point that for me, and many others, having hair like all other women is what helps you to feel feminine. Don’t get me wrong, if I decided to shave my head because I wanted to, or because I fancied a different look, then fair enough. Even if my shaved head looked like a normal shaved head I might not worry so much, but my head is covered with many smooth areas where the damage is permanent and new hair just does not grow. Anyways, this was purely my last hope in terms of breaking the physical aspect of pulling my hair out. The idea was simple: No hair, no pulling. By the time my hair grows back, the urge will be gone. Or so I thought.
Shaving the head has worked for some people, but not for me. As soon as I shaved it all off, I was sat in front of the mirror with a pair of tweezers. If anything, it helped me be more precise! I would let it (the areas that do actually grow new hairs) grow an inch or two and the pulling would be so bad that I had to shave it again.
I hate it. I used to only wear my wigs when I left the house but I feel so ugly and unfeminine that I wear them all the time now. I can’t stand looking at myself without my hair. All the make-up and pretty clothes in the world do not stop me feeling disgusting. The shit thing about it is that I am powerless to stop. I can’t think “Well, I’ll just stop pulling the hair out now and grow it all back” because it doesn’t work like that. It is impossible to explain that frustration that comes with NEEDING to pull and simultaneously begging yourself to stop. Whilst pulling, you are fully aware that you are just making it worse and worse, but you can’t stop. It’s totally fucking infuriating, and no one that hasn’t experienced this understands or gets it. Never once have I seen a GP that actually has any useful advice. I have been given talking therapies and a million different medications, but nothing helps at all. I have tried wearing a hat, keeping hair wet, using a ‘tangle’ or stress ball, shaving my head, taking meds, going to , distracting myself with something positive and getting my other half to bring it to my attention when I am unaware that I am pulling. The latter is the most difficult though. Often, I sit about pulling my hair without realising, and having someone tell me not to do it only makes me feel more anxious which just leads to that urge being stronger.
I read so many stories of people that have managed to overcome Trichotillomania, and I am in awe of every single one of them.
I will end this by answering some of the questions I have been asked over the years, as well as responding to a few comments:
Why don’t you just stop pulling it out? Do you want to be bald?
No. I don’t want to be bald. But thanks for the suggestion, I hadn’t thought of it.
Are you sure you haven’t caught Alopecia?
Yes. I was actually asked this. In fact, not only was I asked this but the person asking the question has known me for nearly 10 years and has witnessed the progression of it all and listened to me tell my stories about finding out that Trichotillomania was an actual thing and that it wasn’t just ‘something only I did’.
Have you thought about seeing a doctor?
Yes. My mum first took me to the GP when I was 9 years old after she was freaked out by my little bald patches. She told the doc all about it and we were simply told “It’s just a phase, she’ll soon snap out of it”.
I went to see different doctors over the years and was told similar things. This was until I actually Googled hair pulling in 2008 and discovered the word “Trichotillomania”. After this, I had to educate my doctors and tell them about it. In 2009 I met the first doctor that actually wanted to help and had a genuine interest and took me seriously. He tried everything he could to help me, but as of today, Jan 2nd 2016, nothing has helped.
Why don’t you just go out without wearing a wig?
If I felt feminine, or ever human without my wig firmly attached, then I might consider it. But my totally smooth scalp across several places on my head just screams “abnormal” and I don’t feel comfortable with that. It may seem shallow, but to me and the way my mind works, women have hair. I have always loved long hair and I don’t feel like myself without it. I won’t even put the wheelie bin out when it’s dark outside and no one is around without wearing it.
It’s disgusting, you know.
Thanks. That was helpful & encouraging.
I’m getting used to walking around with you now, I’m not embarrassed by it any more.
Again, thanks.
I would like to add that as well as the above, I have had a million more negative comments, but I have also had some lovely messages from people all over the world. Everyone with Trich deals with it differently and we all need help and support. It doesn’t matter whether the individual person only pulls their lashes out, or pulls from absolutely everywhere. The issue is the same and the reasons behind it, whatever they are, are all linked in some way. Again, to all of you that are much, much further down the recovery road than I am, I cannot tell you how much respect I feel for you.
This could probably do with a proof read and a cheeky edit, but I am going to post before I lose my nerve.
MissesCee xx